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Patient Perspective: Jamie Troil Goldfarb shares her clinical trial experience [video]

Antidote

Not only will patients be able to gain access to potential new treatments, but they will also be directly contributing to research that can save lives — something that Jamie Troil Goldfarb has experienced firsthand. Jamie received a diagnosis of stage IV melanoma in 2011, only 11 weeks after giving birth to her child.

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Studies into video telemedicine diagnostic accuracy and patient satisfaction find positive trends

Medical Xpress

During the first months of the COVID-19 pandemic, clinicians across Mayo Clinic transitioned to virtual modes of care to continue to treat patients safely—resulting in an increase of over 10,000% in video telemedicine visits between patients and clinical care team members across the organization.

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Alexion and UK patient advocacy groups launch video campaign

Pharma Times

Rare Disease Day has inspired a pioneering video to support patients living with rare conditions

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Interview: Emmes Mindy Leffler - are video based assessments the way forward to evaluate patients at home?

Outsourcing Pharma

Individuals diagnosed with Duchenne muscular dystrophy (DMD) often develop compensatory movement patterns due to muscle weakening.

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Interview: Emmes Mindy Leffler - are video based assessments the way forward to evaluate patients at home?

Outsourcing Pharma

Individuals diagnosed with Duchenne muscular dystrophy (DMD) often develop compensatory movement patterns due to muscle weakening.

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Video provides guidance on surgery to wean patients with COVID-19 off ventilators

Scienmag

Tracheostomy step-by-step guide can reduce aerosol transmission of COVID-19 BOSTON – A temporary tracheostomy–an opening created in the neck to facilitate placing a tube into a person’s windpipe–can be essential for allowing a critically ill patient to come off a ventilator.

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Interview: The Duchenne video assessment tool: integrating the patient voice into rare disease research

Outsourcing Pharma

Duchenne Muscular Dystrophy (DMD) is a genetic disorder that primarily affects males, caused by a mutation in the gene that encodes for a protein called dystrophin. This protein is crucial for the normal functioning of muscles, and its absence leads to progressive muscle weakness and wasting.

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