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A Reflection on Shared Moments of Strength and Progress in the Rare Disease Communities

Worldwide Clinical Trials

For others, this rare day is aptly the day we honor rare disease communities. Each year, we very intentionally recognize Rare Disease Day to honor the rare disease community. This year, we wanted to do something different—something that elevated and extended the reach of the voices in the communities we work with and support every day.

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January 2, 2023: NINR Announces Funding Opportunity to Address Social Needs Through Healthcare-Community Partnerships

Rethinking Clinical Trials

The post January 2, 2023: NINR Announces Funding Opportunity to Address Social Needs Through Healthcare-Community Partnerships appeared first on Rethinking Clinical Trials. NIH staff will provide an overview of the funding opportunity and answer questions from potential applicants. Registration is required.

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How a government biologist with the USDA built her community — and her career — at Regis University

Bio Pharma Dive

When Talisa Puentes-Ortega got the chance to advance her career by going back to school, Regis provided more than an environmental biology degree — it was the foundation of a community that continues to support her.

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Bringing CAR-T into the community: ‘Healthcare is like politics – it’s local’

BioPharma Reporter

Considering this challenging landscape, the shift has focused from academic centers to community clinics, as they may be able to serve more patients. Today, just two in ten patients have access to CAR-T therapy in the US.

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April 24, 2023: Webinar Will Highlight Meaningful Engagement of Patients and Communities in NIH HEAL Initiative Studies

Rethinking Clinical Trials

An upcoming webinar in the NIH HEAL Initiative’s HEAL Headliners series will highlight the experiences of 2 projects in meaningfully engaging patients and community partners throughout the research process to ensure that the findings have the greatest public health impact.

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Video: Community Engagement

Velocity Clinical Research

Reaching the right patients must be prioritized at the site level, where clinical research is most visible in communities. Community engagement and inclusivity programs at Velocity Making Sites Accessible: Establishing sites in demographically diverse, easily accessible locations.

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See You Next Wednesday! EVERSANA INTOUCH Introduces Community Days

Intouch Solutions

EVERSANA INTOUCH recently introduced “Community Days” for our New York City and Chicago offices, in an effort to continue building our agency community and culture. The first Community Days were filled with EVERSANA INTOUCHers. The first Community Days were filled with EVERSANA INTOUCHers. Despite meaningful AI progress.

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