tag patient-voice 
Rethinking Clinical Trials
JULY 9, 2023
BeatPain Utah, an NIH Pragmatic Trials Collaboratory Demonstration Project, is an embedded pragmatic clinical trial comparing the effectiveness of nonpharmacologic intervention strategies for patients with back pain seeking care in federally qualified health centers in Utah.
Rethinking Clinical Trials
FEBRUARY 16, 2023
ICD-Pieces studied patients with chronic kidney disease (CKD), diabetes and hypertension. The study used a patient-information sheet to inform patients about the research, how patient data would be handled, and an option to opt-out of including their data in the study. The study had a waiver of informed consent.
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pharmaphorum
OCTOBER 3, 2022
‘Clearer’ data isn’t expected until 2024, with results from a late-stage phase 3 PHOENIX trial of around 600 patients due at that time. Following news of Relyvrio’s $158,000 annual price tag, both ALS advocates and outside observers have voiced outrage at the cost. ALS affects over 30,000 people in the US.
Rethinking Clinical Trials
JULY 6, 2023
For instance, there is no discussion of the role of the health care provider in the DCTs, but it emphasizes the importance of patient voice. DCTs can make things easier for patients and the research more efficient. The EMA guidance also features an extensive discussion on the need for investigator oversight.
Rethinking Clinical Trials
OCTOBER 27, 2022
Patients use the internet to search for answers, and researchers use the internet to search for new solutions. The Light Collective is an organization that represents collective rights, interests, and voices of patient communities in healthcare technology. Andrea Downing. ePatient and Security Researcher. Key Points. Learn more.
Drug Discovery World
JANUARY 30, 2024
To achieve this, we need greater collaboration between academia, therapy developers and manufacturing equipment developers.” Stella Vnook , CEO, Likarda , notes that a s more regenerative therapy options come to the market, patients will demand access to the treatments, often using the court system. She
Intouch Solutions
APRIL 11, 2024
Commercial : Improved experience and communication between patients and doctors. In the pharma industry, precision engagement can be used to present patients, healthcare professionals (HCPs), and other stakeholders with relevant information and support at the right time. It uses customer insights to deliver personalized experiences.
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